After 9 hours on the road, we safely made it to Salt Lake City! We're checked into the hotel, and now all I have to do is get Sara to go to sleep....which could be tough since she's WAY outside her normal routine. The drive was pretty uneventful, but we did see lots of trains (which Sara was super excited about), along with some elk and pronghorn.
All in all she did great on the drive! Thank you to the person that had the brilliant idea of putting DVD players in the back of cars. Sara watched movies and played with her new video game that she got for Xmas the entire way. There were a couple minor breakdowns, but she did much better than I thought she would since she has never done a road trip before.
I'm really looking forward to seeing this new doctor tomorrow, and talking with the team about the research studies. I know that this visit could very well open a lot of doors for Sara in regards to how we care for her NF.
Now that we're here, we just have to worry about the storm that's in our way of getting home. Got to love bad weather with perfect timing and huge potential to ruin your travel plans.