The report states that Sara's abdominal tumor remains stable. In other words, it continues to grow at the same rate as her body, which is the best we can hope for. The reason for that is because the tumor uses the same growth hormone her body uses to grow. So until she is full grown and stops producing growth hormone the tumor will continue to grow as well.
We don't scan her legs, as you can't really measure the tumors there so we don't see the point. Those tumors are tracked by visual assessment only, and we both agreed that we believe her right foot and left heel to be bigger than her appointment 6 months ago. We believe that they are growing at a rate faster than her body, but there is currently no treatment options. We'll continue to watch and monitor this growth like we have been for the last 3 years.
The other thing we discussed was the continued pain in Sara's right leg. It would appear that it doesn't hurt all the time, but only when it is over loaded with sensation. Sara tells me it hurts when she bumps it, or when I put her sock on that foot. It would seem that her leg is becoming more sensitive as time passes, but again there really isn't any treatment available that we aren't already doing. Sara is already on medicine to help manage these over loads of nerve sensations. Some days it helps more than others, and some days it doesn't help at all. But it is the best we have for now.
Overall, the appointment was a success. Her tumor is stable, and we're doing everything we can to manage whatever pain she has. Her tumor has been stable for over a year, and that is an amazing thing! Some days I never thought it would stop growing. I'm so glad I was wrong!
I'm glad to hear the news was overall good and what you were hoping for!
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