Sunday, May 27, 2012

It's Been Two Years!

I can't believe it!  And my guess is most of you who know Sara can't believe it either.

It's been two years to the day since Sara was released from the hospital the last time!  Can you believe that none of us have chatted with the nurses, ate hospital food, moved IV tubing from the pole on the bed to the pole on the little red wagon, or slept on that uncomfortable couch in those rooms for two years??  The phrase "Sara's in the ER again" hasn't appeared in anyone's text message list.  I haven't had to make that phone call to our family.

As I think about today, and what it might mean, I can't help but go back to the beginnings of this blog.  Oh, how far Sara has come since I started this blog so long ago!  When I started this blog, life was scary and unpredictable.  Its still pretty scary, and fairly unpredictable, but for completely different reasons...just the usual reasons life throws at all of us.

Thanks to an amazing team of doctors that never gave up, and an amazing hospital with the best nurses anywhere, here is a short list of just some of the things Sara has accomplished because she has been healthy enough to do so in the last 2 years.
  • She's attended 2 years of preschool, and is at the head of her class.
  • She's made amazing friends who love her at school.
  • She's been able to travel to Disneyland and Disney World thanks to the support of our family and the Kids Wish Network.  Thank you!
  • She's inspired the people around her to be better.
  • She's always got a smile to share and some kind words when someone's feeling down.
  • She's learned so many things that I can't name them all. Things like reading, writing, math, and what NF is and how it affects her.
  • She's received a bike she can pedal with her hands from Kids Mobility Network.  Thank you!
  • She's celebrated 2 more birthdays!
  • She's learned to swallow pills, making taking meds and traveling much easier.
  • She's learned how to care for her urostomy and how it works.
  • She's moved out of a baby bed and into a big girl bed.
  • She talks about her future and says she wants to be a doctor when she grows up so she can help other kids like her get better.
  • And now Sara is currently attending PT to learn to walk with her walker! 
I'm constantly amazed at all the things Sara is able to do, or at least willing to try to do...even if someone has said she can't.  Sara is an angel from heaven, I feel so blessed to be her mother.  So much has happened in the last two years, and she's grown so fast.  I can't wait to see what the future holds.


  1. Way to go Sara!! And a big way to go to her mom and all those who support the whole family :)

  2. Yea for 2 wonderful, healthy years!!! Congrats!

  3. She sure is an amazing little girl!!! I think about y'all often!!