Tuesday, July 31, 2012

Urological Check-up

I know Sara had this appt 2 weeks ago, so I'm sorry I didn't post sooner.  Life's been crazy here the last couple weeks, and I just plain forgot.  Thanks to those of you that reminded me!

Luckily, for once, there isn't much to report.  Sara's kidneys are doing fantastic!  They continue to look great and function well.  Her stoma looks pink and healthy, and everything seems to be doing good.

The only other thing that was mentioned was some potty training things.  We're going to try a couple things over the next couple months and see if that's something that's even possible for Sara, which the doctor isn't convinced it is.  We're not doing anything major, just some diet and routine adjustments.

Again, so sorry my update is late! 

Monday, July 30, 2012

CTF Racing4Research Meet'n'Greet

On Saturday Sara and I (and some of the family) got the chance to head over to the local speedway to see the CTF Ford #07 Racing4Research car in action.  We also got to do a meet and greet with the driver and crew before the race.

It was amazing!  Sara hasn't smiled that big since the last time we went to Disney.  She loves racing and was so excited to get to see the "behind the scenes" in pit row.  Being at the race, Sara got her name printed on the side of the car as one of the attending NF Heroes!

Here are some of the amazing pictures taken by the amazing man in my life!  Thanks hunny!

 Sara excited to see her name on the car!

Sara tracing her name on the car!

 Sara (and me) with the driver of the #07, Daniel Graeff

The #07 CTF Racing4Research car!

 Some qualifying laps!

Group photo!

It was so much fun!  Sara's already asking when we can go again.  And she's refusing to let me wash her now autographed CTF shirt, so I guess I'll just have to buy her a new one at NF Walk in about a month!  

Saturday, July 7, 2012

2012 Denver NF Walk

I'm excited to say that this year I've had the chance to be more involved in the event this year.  I was asked to be on the planning committee, and its been lots of fun so far.  Still lots to do before it gets here, but I'm really excited to be able to give extra time to help the event be a success since it is so important to Sara and I.

And again this year, Sara's Striders will be participating as a team!  I'm hoping to gather all the people who joined our team last year, and some new ones as well.  I'd love to see this team grow every year and become just a little bit bigger...and maybe even some day participate in other walks in our area, not just supporting NF.  But I also know that's a lot of time and commitment to ask of people, and I know not everyone wants to be as involved as I am.

Here is our team photo from last year!  It was tons of fun, and I can't wait for us all to do it together again!

The Denver NF Walk will be held on Sept. 9, 2012.  It will be happening at Clement Park in Littleton, CO, and registration/check-in will begin at 2pm.

If you would like to join the team, you can register at 

If you are unable to join us, but would still like to support us, you can donate at Julie and Sara's Donation Page.  All donations are welcome and help us to reach our fund raising goal!

If you don't live in the Denver area, but would still like to support NF by participating in a walk close to you, you can join another walk by going to The Children's Tumor Foundation and clicking on the NF Walk logo.  There are many walks all over the country, and I'm sure there is one close to you.

Thank you to everyone who has supported Sara through this amazing journey!  And thank you for your continued support as we gather together to help raise money to find the answers that Sara, her family, and so many others are so desperately looking for.